Our Community Outreach Partner for September: The Truth 365

Over 15,000 kids will be diagnosed with cancer in the next 365 days. Cancer kills more than 2,500 children in our country every year.

The goal of The Truth 365 is to educate and mobilize millions of people through Facebook, YouTube, Twitter and other social networking sites. Their full-length documentaries and shorter films inform the public that there is a critical need for funding for childhood cancer research. Through increased awareness comes increased funding. You see, children *should be* our nations’ priority. Yet, the shocking lack of funding for childhood cancers indicates otherwise. We are sad to again be including this fact in our blog: the National Cancer Institute allocates only 4% of it’s cancer research budget toward childhood cancers. And 4% is simply not enough. Drug companies aren’t allocating research dollars either, as there are 16 major types of pediatric cancers and over 100 subtypes – all of which need to be approached differently. Much of the funding for new therapies are left to be raised by the parents, which is a burden they should not have to bear. Yet, they do, faced with no other options for helping their children. They bike, run, shave their heads, participate in ultra marathons — just about anything they can do — they will to raise money to give to advance research.

We would love for you to spread the word about CureFest, an amazing and FREE childhood cancer event in Washington DC! This year, CureFest will be September 15th and 16th, with the 1.8 mile walk on Sunday.

We are donating $1 from every haircut from both locations this September to The Truth 365. You also have an opportunity to help by donating at our front desk where you can fill out a Childhood Cancer Awareness Square to hang in our window to help us #GoGold this September! To read more about the shocking facts of childhood cancer, please read our blog post from last year.

childhoodcancersquare

Our Community Outreach Partner for August & September: The Truth 365

We cannot say enough good things about the work The Truth 365 is doing in the childhood cancer community. Their beautiful (and Emmy award winning!) documentaries and media campaigns (such as this breathtaking one of Kylie Myers) are bringing awareness to a cause that so desperately needs it. Through increased awareness comes increased funding. You see, children *should be* our nations’ priority. Yet, the shocking lack of funding for childhood cancers indicates otherwise. We are sad to again be including this fact in our blog: the National Cancer Institute allocates only 4% of it’s cancer research budget toward childhood cancers. And 4% is simply not enough. Drug companies aren’t allocating research dollars either, as there are 16 major types of pediatric cancers and over 100 subtypes – all of which need to be approached differently. Much of the funding for new therapies are left to be raised by the parents, which is a burden they should not have to bear. Yet, they do, faced with no other options for helping their children. They bike, run, shave their heads, participate in ultra marathons — just about anything they can do — they will to raise money to give to advance research.

We are encouraged by a few amazing breakthroughs in recent weeks. The RACE for Children’s Act became law, which will significantly increase the number of new drugs available to children with cancer as well as increase new research dollars flowing into childhood cancer research. And on August 30, 2017, the FDA approved a groundbreaking CAR T Cell Therapy for kids battling leukemia.

But there is more to do, which is why Salon Khouri will continue to partner with The Truth 365 #UntilChildhoodCancerIsExtinct in honor of Kate, Mathias, AlexGabby, Kyle, Gavin, Chris, Delaney, Casey, Declan, Isabella

We would love for you to spread the word about CureFest, an amazing and FREE childhood cancer event in Washington DC! We will once again be volunteering at the Crazy Hair Day booth! And this year, CureFest has some AMAZING headliners! Sabrina Carpenter, Caly Bevier (Simon Cowell’s Golden Buzzer pick from last year) and World of Dance qualifier Diana Pombo! Please share this page to let people know about the awesome talent lined up for this year and encourage them to join in being a voice for children battling cancer.

SabrinaCarpenter

 

 

We are donating $1 from every haircut from both locations in August and September to The Truth 365. You also have an opportunity to help by donating at our front desk where you can fill out a Childhood Cancer Awareness Square to hang in our window to help us #GoGold this September! To read more about the shocking facts of childhood cancer, please read our blog post from last year.

childhoodcancersquare

Epic inspiration from a boy named Mathias

by Jennifer Elkhouri

mathiasIf you want to see love, and I mean real love, just take a few minutes to scroll through photos on the Team Mathias Facebook page. I will warn you — there is such beautiful love displayed in these photos that you will be overwhelmed.

Mathias exuded love. Through his smile. Through his heart for others. Even while he himself was battling osteosarcoma, he was always thinking of how to help others and to put others before him. Selfless love.

You will see photos of Mathias’ brother, Troy, and Mathias’ mom and dad, Roya and Chris. And in those photos, you will see the tremendous love they have for each other and Mathias.

In other photos, you will see teams of people jumping into ice cold water for Mathias; hundreds gathering in a field to create a gigantic human yellow-gold ribbon for Mathias, and you will see many photos of breathtaking sunsets shot days after Mathias passed when the evening sky displayed colors that only seem possible in dreams. You will indeed see beautiful displays of love from Mathias, from his family, and from the community that surrounded him during his battle with cancer.

childhood_cancer_plate32You will also see lots of photos scattered throughout of Cure Childhood Cancer license plates — a plate that didn’t exist in Virginia prior to 2015. Mathias wanted so badly to spread awareness about Childhood Cancer and his passion inspired the ‘Mathias Bill’, or HB1319, which created a Cure Childhood Cancer specialty license plate available in Virginia. (Other states are following and creating specialty Childhood Cancer Plates! #Epic!) Roya worked with Jay Coakley of Ellie’s Hats, and Del. Tag Greason (R-32nd), to create the bill in honor of Mathias after Roya learned there was no specialty plate in Virginia for childhood cancer. Upon telling Mathias that there was no specialty plate to spread awareness about the disease he and many other children were battling, Mathias replied, “That can’t be right. Everyone knows what the pink ribbon stands for. We have to get the gold out there, Mom.” Our cars proudly display CC plates and we would love to honor Mathias by asking you to apply for a specialty Cure Childhood Cancer plate for your cars through the DMV. Let’s make the yellow gold ribbon as ubiquitous as the pink ribbon in honor of Mathias and other precious children who have lost their battle to cancer.

Mathias passed on December 7, 2014. I had never met him, but had been following his story on Facebook as our family prayed for him daily. We did little things from afar to support Mathias. I asked our kids if they would like to be a part of the giant gold ribbon mathiasribbongathering in to support Mathias — it was something we felt we could do to show our support and love for him. There was just something about Mathias that grabbed my heart. A lot of these kids do, but Mathias really drew me in. He was the kind of boy I wanted our son to grow to be – kind, loving, trusting in God, and with an excellent sense of humor to boot! Our family was devastated when he passed. I attended Mathias’ funeral and sat next to a group of young girls about Mathias’ age. I wept with them and shared my tissues. My heart was broken to pieces for Mathias’ family — for such a heavy and hard loss. It’s almost been two years and I still think of Mathias almost daily. I smile with joy when I see photos of Mathias. Our littlest yells out, “Mathias!” anytime she spots a Team Mathias bumper sticker, shirt or a CC license plate. I wave at drivers who have CC plates and smile, thinking of what an inspiration Mathias continues to be to so many.

This December, Salon Khouri is donating $1 from every haircut from both our Fairfax and Dulles Landing locations to Team Mathias. Additionally, we are collecting gift cards to donate to Team Mathias for Team Mathias Care Packages. Mathias wanted to create care packages for families of children battling cancer. He especially wanted siblings included! Gift cards from Bed Bath and Beyond, Target, Itunes, and Amazon are perfect for these Care Packages. And, for each gift card you bring to Salon Khouri for donation to a Team Mathias Care Package, we will enter you into a drawing to win a $50 Salon Khouri Gift Certificate as our way of saying thank you. Also, if you have a Cure Childhood Cancer plate, post a photo to our Facebook page to be entered into a drawing to win a customized Kevin Murphy Treat.Me hair treatment and blow dry!

We’re Joining Alex’s Army this March!

Alex Green was diagnosed with a Stage IV Wilms Tumor in 2009 at the young age of 5. To say he is a fighter is a bit of an understatement. As of September 2014, Alex has endured 400 chemo/infusions/immunizations, 100 clinic visits, 15 ER visits, 200 inpatient admissions, 300 IV pokes, 34 total days of radiation, 32 times being put to sleep, 1 bone marrow aspirate, 100 scans (CT/Xray/PET/Echo/EKG) and 15 surgeries. None of it has been easy, and we hope and pray for a cure for Alex and for the thousands of other children battling cancer.

We love finding local non-profit organizations that are making a difference in unique and meaningful ways, and for the month of March, we chose Alex’s Army Childhood Cancer Foundation. AACCF was created to provide Christian based support to children, parents, siblings, family members and friends living with a Pediatric Cancer diagnosis while raising awareness and funding for Pediatric Cancer Research.

We will be donating $1 from every haircut this month to Alex’s Army in the hopes that one of those dollars will help bring us one step closer to a cure.

AlexsArmy

 

 

This battle is relentless, exhausting, heartbreaking, but we stand strong and fight for our baby, no matter what that might mean. – Jenni and Derek Green